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Thursday, August 17, 2017

The Simple Things


When we go through bad times, it really makes you stop and think about the simple, little things.
Funny how things change as you get older.
Too bad we can't be wiser when we are young.


One day I told one of my daughters to go look at a plant that
had the most beautiful blooms.
She didn't act interested.
I said, "That don't do anything for you, does it?"
She said, "no!"
Then I thought to myself......she will
appreciate its beauty one day.
You look at things different as you get older.

My "Sweet Hunter" had to go on a business trip
so I had a couple of days at home.
I only left once for 30 minutes.
As I worked in my house I took my time
and enjoyed every minute.

The whole time I couldn't help but think
how blessed we are.
Not many people can go out in your back yard and
get fresh eggs.

It took me years to realize how content
I am. It's the simple things. It doesn't take much
to be content in this life. So many people are searching for
happiness when it's right in front of them.
I watch very little news because this world has gone crazy.
The hate that is out there is so sad.
I think I will just stay in my little home, bake my cookies,
pick my garden, bake bread, cook meals, wash clothes, etc.
With our granddaughter sick, our family is taking one day at a time. If I have learned anything in this storm we are in, it is to be thankful and appreciate the little things.
********************************
Philippians 4:11
Not that I speak in respect of want: for I have learned, in whatsoever state I am, therewith to be content.


Wednesday, August 16, 2017

A Rough Year

I couldn't believe it when I logged in
to my blog and saw that my last post
was in March.
I am sorry.
It has been a hard year.
To make a long story short,
our granddaughter is still very sick.
She is totally dependent on a feeding tube.
She is not eating or drinking.
As long as she gets her nutrition she is able to function
pretty normal but she's always in pain.
Gastroparesis is a hard thing.
It is basically a paralyzed stomach.
It is also called an "invisible illness."
You look fine but you are sick.

This is her senior year and after missing
most of last year she was
determined to go to school this year.
The weekend before school started her feeding tube broke.
She was admitted in to Cincinnati Childrens Hospital again.
After 2 attempts trying to place the feeding tube in,
the third time they had to
put her to sleep to accomplish this.
It is so traumatic.
I will be honest. This has been the hardest thing ever watching your granddaughter
suffer and you can't do anything about it except be there for her and the whole family.
We had a pretty good summer considering that Alyssa doesn't eat or drink.
She is attending school as much as she can.
The school has been wonderful and
they are working with her so
she has all the freedom she needs to come and go.
They said their main goal is for her to walk across the stage to
graduate at the end of the year.
The farm is growing by leaps and bounds.
In fact, I am selling some of my chickens.
Have you heard of  "Chicken Math?"
It happens before you know it.
You start with 12 and they turn in to 60!!!
(Smile!)
Do any of you remember Triston?
I used to call her "Sweet Teen" on this blog.
Well, she is 22 years old.
She just graduated with her Masters and
she is teaching Fifth Grade Math!
We are so proud of her!
And Then there is Brett.
I called him "Brother" on my blog.
Last Sunday he got baptized.
What a happy day!
He's 14 and a freshman this year!
Here is our other grands!
They are growing so fast.
Davis is in the 2nd grade and
Asher just started kindergarten!
This is our youngest!
He is almost 3 years old!
He's a miracle baby.
Remember praying for him?
He keeps us hopping!
We are so blessed.
************************
Well, that's a recap. We need prayers.
We are waiting on our miracle!
Trusting and believing!









Monday, March 13, 2017

Update On Sweet Angel

Well, here we are in Cincinnati at the Childrens Hospital
wearing our "Prayers for Alyssa" T shirts,
getting to see Alyssa for the first time in
a couple of weeks.

She looked so good!
Between the feeding tube, the pic line, and all the prayers........
they saved her life!
We cannot say enough about this hospital!

Here she is with her baby cousin....Huddy!
She didn't think he was coming but we surprised her!

Here she is reading a card from one
of "Big Sis's" friends that had cancer
and is now a Miracle! 
The card was precious because after all this lady had been
through, she was encouraging Alyssa!

I think I told you last time that
when Alyssa was in Chattanooga,
I really lost my hope.
I knew the Lord was there.
I just couldn't see him or feel him.
But looking back there were lots of miracles everywhere.

She was so surprised to see all of her family!
It was good to see her smile.
Look at the beautiful gowns my Mom found her
online! She had to wear hospital gowns but wanted
them to be pretty.
I think Mom did good!

Every day my daughter had a different word or phrase.
I remember the saddest day was when she said she
asked God....WHY?
I tried hard to encourage her without letting her know
I was asking the same question.

People are amazing. This is a gift from someone that
doesn't even know Alyssa. I know them.
Matt & Latisha Winters gave her this gift and
I can't tell you how much this meant to Alyssa
and me. Latisha's Mom was a friend of mine and
she is in Heaven now so this was very special to me.
They gave her a tablet and spent
30.00 just to overnight it to her!
Other friends sent money. Lots sent cards.
I hate to even name names because I would forget someone.
Even blogging friends sent gifts of love.
Amazing.
Another friend sent her a huge box
of so many things I can't even name.
The special thing about this gift is my friend, Nancy Howell had
an aneurysm and was having surgery the next day after shipping this box to
Cincinnati.
This is the kind of person she is.
She always thinks of others.

She even sent my daughter and son in love special goodies
in the box.
She also gave them stamps and thank you cards.
So selfless.
Nancy came out of her surgery good.
I haven't got to see her yet.
But I hope to soon.


I cannot say enough about these two.
They never left her side.
They fought for her.
They went against doctors in Chattanooga
when they knew something was wrong.
Mom & Dad.
There is nobody like them.
I am so proud of them.
They are tired and worn out.
Please pray for them.
This one right here is also a fighter.
They got to bring her home last Thursday.
She was in two hospitals for almost a month.
She's been sick for 3 years but was able to tolerate it
until Christmas night.
She stopped eating.
After getting nutrition and pic line she looks like our
Alyssa!
Alyssa is still not eating but is trying and
still has the feeding tube.
She wants to get better so bad and get back to life.
But for now we are so thankful just to have her here.
We are waiting on her next miracle
and we know it's coming.
Thank you all for your prayers.
Please don't stop.
She has a long road ahead of her but as one of my friends said,
"at least she's on the road!"
***********************

Albert Einstein once said......
There are only two ways to live your life:
As though nothing is a miracle,
or as though everything is a miracle!

If you would like to read her story you can go HERE!

Wednesday, March 1, 2017

Update On Our Granddaughter

On February 13th Alyssa was admitted
to the hospital in Chattanooga Tenn.
She was so sick. We were there 8 days.
They tried to force her body to accept
pedialyte through the feeding tube but she couldn't do it.
There was pain that I cannot describe.
Bless her heart.
The closest thing to Brother telling his sister goodbye.
He doesn't understand but tries to act cool.

You are seeing pictures after her Mom had them take her off
all the drugs that were keeping her drugged up.
Although her Mom didn't want her to be in pain,
she wanted her to be aware of what was going on
to help us understand what all needed to be done.

This was the worst night to me.
They called me to come up there about midnight.
I hadn't been gone long.
By the time I got there, things had calmed down.
But it was a hard hard night.
I cannot describe with words what I walked in to see.
You probably remember Maranda, (Big Sis).
She's actually her aunt but Alyssa loves her like a Mom.
They are so close.



Long story short, her Mom and dad insisted on transferring
Alyssa to another hospital.
They had done their research and
determined that Cincinnati Children's Hospital
would be the best for Alyssa.
This is Alyssa's dad hugging me bye that night.
I was so sad to see them go but it's been the best thing for Alyssa.
We had been through a hard 8 days together.
There's honestly too much to tell.
It was indescribable.
This is "Sweet Teen" telling her sissy goodbye.
Aren't they sweet?
And here I am getting some love before she goes to Cincinatti.

So after being up night and day we knew that her Mom & Dad
could not drive. It was a 5 1/2 hour drive.
My "Sister In love" called and said
she was praying and she heard the
word flight. We had not thought of that,
so my daughter said she would
call and check flights.
Our Sister in Love said, "Let me make a couple of phone calls."
Next thing we knew there was a
private jet waiting to take them
to Cincinnati.


I will be honest. I looked for God that week in Chattanooga hospital.
I couldn't see HIM. I couldn't feel him.
Our daughter was asking...."Why?"
We all were.
But when this answer to prayer when the jet came through,
I saw God in a big way!
HE let me know everything was going to work out.
I knew HE had been there the whole time.
I have often heard it preached
about feeling like HE was not there
but I have never experienced it.
Now I know how that feels.
Right now, Alyssa is still in Cincinnati
but things are really looking up as
of today.
So far, we cannot say enough
about Cincinnati Childrens Hospital.
We are waiting on our miracle.
Keep praying.
If you would like to read her story....
click HERE!


Friday, February 24, 2017

Alyssa's Story

3 Years ago we went to a birthday party at a restaurant.
I think there were 60 people there.
17 people got deathly sick.
2 were hospitalized with Alyssa being one of them.
March 6th, 3 years ago, she was hospitalized with ecoli!
We had no idea where this would take us.

She was a very sick little girl.
There was no rhyme or reason for everyone being sick.
The strange thing is everybody didn't eat the same thing
and Alyssa and her Mom even shared a plate.
We called it food poisoning but it wasn't.
We have now learned that most likely the person
handling the silverware, plates or glasses,
more than likely didn't wash their hands properly, therefore
explaining why some got sick and some didn't.
Over the next 3 years Alyssa would have flairs of
stomach issues. She even had her gall bladder removed
thinking that was it.
The flairs wouldn't last long but
we all knew she had not been the same
since that sickness.

On Christmas night her family was at a Christmas party.
She came to her Mom and said she was very sick.
Long story short. That night was the beginning to this nightmare we are living.
Since Christmas night Alyssa has not eaten food.
Her Mom and Dad would get her to eat a bite or two
here and there but it put her in so much pain
it was not worth it to Alyssa.
They would bring her to me while they worked.
Alyssa just sat. She didn't talk. She was in constant pain.
They had to put her on homebound at school.
(Her daddy holding her hand in above picture)

Then it got to the point that Alyssa
was not able to come to my house
so I would go to her house.
She was declining everyday.
Over the weeks after Christmas, she spent many nights in emergency rooms and at doctors.
Her Mom & Dad begged for her to be admitted but our
Medical system is so messed up right now. It was hard to get anyone's attention but we all knew she was going down hill.
Over the past 3 years she has seen 4 GI doctors 
& lots of other doctors and
they all said everything was normal until the last one.
(Her Mom holding her hand in above picture)

We could see Alyssa was getting discouraged.
She was in so much pain but
nobody could find what was wrong.
But finally, a doctor did a nuclear test
and saw she had delayed processing.
He diagnosed her with Gastropresis along with some
underlying issues.
It is basically a paralyzed stomach.
Finally, a diagnosis.
They put a feeding tube in and sent them home to feed her through that, but her body rejected the formulas they put in.
It causes her body to go in to distress.

Then Monday, Feb. 13 she crashed.
They had to call 911.
She finally was admitted in the hospital.
After spending 8 days in Chattanooga hospital
the doctors had done all they knew to do,
her Mom requested being transferred
to Cincinnati Children's Hospital.
If you would like to send her a card to brighten her day
here is the address:

Cincinnati Children's Hospital
Attn. Talley A4S - Room 442
3333 Burnet Avenue
Cincinnati, OHIO 45229
*Update: Alyssa is home now with a feeding tube.
She is still under the care of the Cincinnati Childrens Hospital.

This is the latest update as of yesterday:

Last 24 hours we've had lots of issues with IV's and about to be required to get another one. Nutrition is still the priority. That's what our prayers are for right now.

The hospital is wonderful to keep the kids busy. She has played Family Feud on TV with all other patients watching, won BINGO, and had an artist draw a pic just for her. Pretty fair day.


Please continue to lift up Alyssa, her Mom & Dad, our family, the doctors and nurses up to our Lord.
Thank you all for your love, your prayers and your support with the t-shirts. Our family thanks you from the bottom of our hearts. Honestly. Thank you is not enough.
Nutrition is our main goal.
We are hoping the doctor will have a plan today.
Alyssa's spirits are up even though she is always in pain.
We are waiting on our miracle.
One night when Alyssa was having a bad night and they called me back to the hospital,
this is what I walked in to see.
It brought tears to my eyes.
Shannon, ( her mom) lays in the bed with her, holding her.
Bryan, ( her dad) literally sat up all night many nights.
A parents love for their child is beyond describing.
Just think.
This is how God is, with us.

*Update:
After being in 2 hospitals for a month,
Alyssa is home now with a feeding tube.
Thanks to the Cincinatti Childrens hospital they
were able to administer a picc line and
slowly get her body to accept nutrition
through the feeding tube.
She has had one flare since we have been home
where she had to be transported to the hospital
only for monitoring until it passed.
Please continue to pray for her.

This is our family you are praying for.
I can tell you that this Mom & Dad would give up
everything to make Alyssa better.
I've watched them. They have been amazing.
We would give up everything to make her better.
When something like this happens, houses, cars, jobs etc.
are nothing. The things we think are important
aren't important anymore.

You never know from day to day
what can happen in your family.
In our wildest days we would never
 have thought we would be here.
Our family is asking you to keep praying.
We are a very close family and
this journey we are on is hard to understand.
Please keep praying while we are waiting on our miracle.
Where would we be without our Lord?
Thank you all from the bottom of our hearts.
*********************

If you would like to purchase a t shirt please send an email to prayersforalyssa413@gmail.com. All sizes are available right now. Men, women and children. Please include size, quantity and whether you want it shipped or pick up. You will receive an invoice to pay through PayPal. If you are local, you can pay at pick up. Just order through email and state you will pay at pick up. The t shirts are 15.00 for local pick up. If you would like it shipped, your shirt will be 18.00 to cover shipping costs. All money raised will go to help them in their time of need. You also can send me private message. Thank you for praying for Alyssa and helping our  family. For such a time as this.

Child sizes:
YXS (2/4)
YS (6/8)
YM (10/12)
YL (14/16)
YXL (18/20)

Adult sizes:
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Thank you for your prayers and support. If you have trouble ordering you can text me with info. at 706 913 3337.