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Friday, February 24, 2017

Alyssa's Story

3 Years ago we went to a birthday party at a restaurant.
I think there were 60 people there.
17 people got deathly sick.
2 were hospitalized with Alyssa being one of them.
March 6th, 3 years ago, she was hospitalized with ecoli!
We had no idea where this would take us.

She was a very sick little girl.
There was no rhyme or reason for everyone being sick.
The strange thing is everybody didn't eat the same thing
and Alyssa and her Mom even shared a plate.
We called it food poisoning but it wasn't.
We have now learned that most likely the person
handling the silverware, plates or glasses,
more than likely didn't wash their hands properly, therefore
explaining why some got sick and some didn't.
Over the next 3 years Alyssa would have flairs of
stomach issues. She even had her gall bladder removed
thinking that was it.
The flairs wouldn't last long but
we all knew she had not been the same
since that sickness.

On Christmas night her family was at a Christmas party.
She came to her Mom and said she was very sick.
Long story short. That night was the beginning to this nightmare we are living.
Since Christmas night Alyssa has not eaten food.
Her Mom and Dad would get her to eat a bite or two
here and there but it put her in so much pain
it was not worth it to Alyssa.
They would bring her to me while they worked.
Alyssa just sat. She didn't talk. She was in constant pain.
They had to put her on homebound at school.
(Her daddy holding her hand in above picture)

Then it got to the point that Alyssa
was not able to come to my house
so I would go to her house.
She was declining everyday.
Over the weeks after Christmas, she spent many nights in emergency rooms and at doctors.
Her Mom & Dad begged for her to be admitted but our
Medical system is so messed up right now. It was hard to get anyone's attention but we all knew she was going down hill.
Over the past 3 years she has seen 4 GI doctors 
& lots of other doctors and
they all said everything was normal until the last one.
(Her Mom holding her hand in above picture)

We could see Alyssa was getting discouraged.
She was in so much pain but
nobody could find what was wrong.
But finally, a doctor did a nuclear test
and saw she had delayed processing.
He diagnosed her with Gastropresis along with some
underlying issues.
It is basically a paralyzed stomach.
Finally, a diagnosis.
They put a feeding tube in and sent them home to feed her through that, but her body rejected the formulas they put in.
It causes her body to go in to distress.

Then Monday, Feb. 13 she crashed.
They had to call 911.
She finally was admitted in the hospital.
After spending 8 days in Chattanooga hospital
the doctors had done all they knew to do,
her Mom requested being transferred
to Cincinnati Children's Hospital.
If you would like to send her a card to brighten her day
here is the address:

Cincinnati Children's Hospital
Attn. Talley A4S - Room 442
3333 Burnet Avenue
Cincinnati, OHIO 45229
*Update: Alyssa is home now with a feeding tube.
She is still under the care of the Cincinnati Childrens Hospital.

This is the latest update as of yesterday:

Last 24 hours we've had lots of issues with IV's and about to be required to get another one. Nutrition is still the priority. That's what our prayers are for right now.

The hospital is wonderful to keep the kids busy. She has played Family Feud on TV with all other patients watching, won BINGO, and had an artist draw a pic just for her. Pretty fair day.


Please continue to lift up Alyssa, her Mom & Dad, our family, the doctors and nurses up to our Lord.
Thank you all for your love, your prayers and your support with the t-shirts. Our family thanks you from the bottom of our hearts. Honestly. Thank you is not enough.
Nutrition is our main goal.
We are hoping the doctor will have a plan today.
Alyssa's spirits are up even though she is always in pain.
We are waiting on our miracle.
One night when Alyssa was having a bad night and they called me back to the hospital,
this is what I walked in to see.
It brought tears to my eyes.
Shannon, ( her mom) lays in the bed with her, holding her.
Bryan, ( her dad) literally sat up all night many nights.
A parents love for their child is beyond describing.
Just think.
This is how God is, with us.

*Update:
After being in 2 hospitals for a month,
Alyssa is home now with a feeding tube.
Thanks to the Cincinatti Childrens hospital they
were able to administer a picc line and
slowly get her body to accept nutrition
through the feeding tube.
She has had one flare since we have been home
where she had to be transported to the hospital
only for monitoring until it passed.
Please continue to pray for her.

This is our family you are praying for.
I can tell you that this Mom & Dad would give up
everything to make Alyssa better.
I've watched them. They have been amazing.
We would give up everything to make her better.
When something like this happens, houses, cars, jobs etc.
are nothing. The things we think are important
aren't important anymore.

You never know from day to day
what can happen in your family.
In our wildest days we would never
 have thought we would be here.
Our family is asking you to keep praying.
We are a very close family and
this journey we are on is hard to understand.
Please keep praying while we are waiting on our miracle.
Where would we be without our Lord?
Thank you all from the bottom of our hearts.
*********************

If you would like to purchase a t shirt please send an email to prayersforalyssa413@gmail.com. All sizes are available right now. Men, women and children. Please include size, quantity and whether you want it shipped or pick up. You will receive an invoice to pay through PayPal. If you are local, you can pay at pick up. Just order through email and state you will pay at pick up. The t shirts are 15.00 for local pick up. If you would like it shipped, your shirt will be 18.00 to cover shipping costs. All money raised will go to help them in their time of need. You also can send me private message. Thank you for praying for Alyssa and helping our  family. For such a time as this.

Child sizes:
YXS (2/4)
YS (6/8)
YM (10/12)
YL (14/16)
YXL (18/20)

Adult sizes:
S
M
L
XL
2X
3X
4X
5X

Thank you for your prayers and support. If you have trouble ordering you can text me with info. at 706 913 3337.










23 comments:

Latane Barton said...

Oh, my heart is breaking. Poor child and poor family. I will pray for her to get better soon.

Krista S said...

I am praying!

eileeninmd said...

Hello, what a sad story. Sending get well wishes and my prayers go out to Alyssa and her family.

Diane Smitson said...

Praying every night for Alyssa and family! She looks so much better!!!

webbsway said...

O Val, this is so heartbreaking.

Mildred said...

We are praying.

Anonymous said...

Praying Alyssa!! May God give her strength and courage.

Mrs Morrison said...

Having taught Alyssa, I was able to get to know how sweet she is! She always puts others first and always made sure others were ok. I know God has his arms wrapped around her and will take care of her. Prayers for my sweet Alyssa and her sweet family. Love, Mrs. Morrison

Ruby Reece said...

Thank you for sharing your story as I've followed you and have know this family through Church. I pray for healing, peace, strength for all.

Anonymous said...

Prayers going up for all you guys Amen

Susannah said...

My heart is broken for all of you but I think that makes me pray more and more. Love you all.

MarLetta said...

We pray daily for Alyssa, her parents, siblings and grandparents for strength for this journey, healing for Alyssa but most of all for the beauty of God's promises and miracles to be an awesome testimony when Alyssa and family comes back home from the hospital. Much love and prayers!

Connie the Cootiebug said...

Alyssa is a precious "angel" of a girl and I've been praying for her. I'm glad she's in a hospital where the caregivers can give her the care she needs to make her healthy and strong and well again. God bless her and them. xo xo xo connie

Freda said...

Heartbreaking! Prsying for Alyssa & all those involved in her care! Bryan was my daughter's softball coach for a couple of years. So sorry the family is going through this!

Anonymous said...

I am so sorry this has happened to your family you all are in my prayers GOD BLESS YOU ALL

Anonymous said...

Praying for everyone. Heartbreaking.

Anonymous said...

In the Name of our Lord Jesus Christ we declare that Alyssa is healed, she will be able to do what she hasn't being able to do!

Needled Mom said...

This has to be so hard on all of you, Val. I'm so glad that she was transferred to such a great hospital. My prayers continue. Thanks for the update.

Wendy Dale said...

Praying for Ayllisa her family and all the Dr's involved in her care.

Rose said...

I pray there a solution to this soon!

Anonymous said...

It is always so tragic when a child has to suffer...Dear Heavenly Father, You know what Alyssa is going through, along with her family. I pray, Dear God, that you would bring a complete healing for Alyssa. Give her strength and fortitude. You created our bodies, and I know you can heal our bodies, if it be thy will. Please lift her up and give her strength, guide the doctors that an answer may be found...in Christ name. To God be the Glory.

Cassie Dean said...

Praying for you guys miracles happen everyday keep pushing thru baby girl u got this

Talicia Griffin said...

Praying baby girl